Socio-cultural and Economic Challenges Confronting Caregivers of Children with Disabilities in Kilolo District, Tanzania
Kaizer C. Mfilinge *
Community Development and Project Management Programme, University of Iringa, P.O. Box-200, Iringa, Tanzania.
*Author to whom correspondence should be addressed.
Abstract
The well-being of children with physical disabilities is highly dependent on the absence or reduction of the caregiving burden on caregivers. This study aimed to investigate the social, cultural, and economic challenges facing caregivers in the provision of social well-being to children with Physical Disabilities supported by MAWAKI organization in Kilolo District, Iringa region, Tanzania. The study adopted a case study design where interviews and Focus Group Discussions (FGDs) were used to collect information from the caregivers of children with physical disabilities, MAWAKI organization staff, and Village Executive Officers (VEOs). The thematic analysis was used to analyze qualitative information collected from the respondents. From the study findings, it is concluded that the social challenges facing the caregivers of children with physical disabilities include inadequate availability of social programs, marriage conflicts, and poor family relationships. The cultural challenges identified by the study to affect caregivers of children with disabilities were community negative attitudes, perceptions, and beliefs towards children with disabilities. On the other hand, the existence of poor financial support, and the high cost of health and transport services were concluded as the economic challenges facing caregivers of children with physical disabilities. Therefore, the study recommended that caregivers needed to be provided with affordable social and economic support services together with the existence of effective implementation of government policies and laws related to disabled people in Tanzania.
Keywords: Caregivers, socio-cultural, economic, physical disabilities
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References
UNICEF. Education, Equity and Quality; 2016. Available:http//www.unicef.org/Tanzania/6911_10874.html
Resch JA, Mireles G, Benz MR, Zhang D, Peterson RL, Grenweldge C. Giving parents a voice: A qualitative study ofthe challenges experienced by parents of children with disabilities. Rehabilitation Psychology. 2010;55:139-150. DOI: 10.1037/a0019473
Ingstad B, Whyte SR. Disability and Culture. University of California Press. 1995:307.
Hastings RP, Taunt HM. Positive perceptions in families of children with developmental disabilities. American Journal of Mental Retardation. 2002;107(2):116-127. DOI: 10.1352/0895-8017(2002)107<0116:PPIFOC>2.0.CO;2
Kittay EF. ‘When Caring Is Just and Justice Is Caring: Justice and Mental Retardation’ in Kittay EF, Feder EK. (eds.) The Subject of Care. Feminist Perspectives on Dependency. Rowman and Littlefield Publishers: Lanham. 2002:257–276.
The United Republic of Tanzania. Tanzania Population and Housing Census General Report. Central Census Office, National Bureau of Statistics President’s office Planning and Privatization Dar es Salaam. 2012; 203.
Singongo C, Mweshi M, Rhoda A. Challenges experienced by mothers caring for children with cerebral palsy in Zambia. South African Journal of Physiotherapy 2015;71(1):Article # 274,6. Available:http://dx.doi.org/10.4102/sajp.v71i1.274
Gupta A, Singhal N. Positive Perceptions in Parents of Children with Disabilities. Corpus ID: 34107694; 2004.
Shirley AS, Amily F, Zulhabri I, Norashikin H. Work-Family Conflict among Working Parents of Children with Autism in Malaysia, Procedía Computer Science. 2017;105:345-352. Available:https://doi.org/10.1016/j.procs.2017.01.232
Suriati S, Zainiyah SS, Lye M, Norlijah O. Assessing the unmet needs among caregivers of children with disabilities at the community-based rehabilitation centers in Selangor. Malays J Public Health Med. 2011;11(2):32-40.
Katiti V, Sigalla GN, Rogathi J, Manongi R, Mushi D. Factors influencing disclosure among women experiencing intimate partner violence during pregnancy in Moshi Municipality, Tanzania; 2016. Available: https://doi.org/10.1186/s12889-016-3345-x